A step in the Right Direction

After learning that Cycle 7 had failed us, we decided enough is enough. 

We refuse to continue to put our faith in doctors who aren’t willing to try new ways to help us achieve our baby dream. 

I truly do have the utmost respect for Dr Lyndon Hale, he is a fantastic Doctor, a beautiful man; but he is very by the book! And time is proving that we are not a textbook case. 

7 cycles of ICSI, 3 of which were Full Stimulated cycles, not yet pregnant… Time to dig a little deeper……

I suffer from Endometriosis and Poly Cystic Ovaries. I have had 2 Laparoscopic Surgeries in the last 4 years to remove both. However both are recurrent and return – generally worse than before 😔

I have an amazing Gynaecologist (Dr Stan Tsocanos – Epworth) , I trust him with my life! 

As it has been 15 months since my last laparoscopy, we decided to call my gynaecologist (Dr Tsocanos) and see if there is anything he thinks we should do before revisiting IVF. Called Monday, appointment within 48 hours 🙌. 

As soon as I stepped into my gynaecologist office this morning, I felt at ease. I knew I would leave on a positive note, within minutes we were discussing booking me for the NK Cells biopsy; he requested another laparoscopy whilst I’m under anyway, suggested flushing my Fallopian tubes and making sure my pelvis and uterus are healthy moving forward. 

When I requested NK Cells with Dr Hale I was handing what appeared to be a pathology form with my name written as Shak…. No explanation as to what it involves, nor was it advised that it was conducted under anaesthetic on day 25 of my menstrual cycle. It’s like Melbourne IVF treat it as taboo! 

When I mentioned switching to Dr Nick Lolatgis, he was immediately on board! We were soon discussing techniques pioneered by Dr Lolatgis, explaining potential genetic issues we may be facing and what technologies are in place to treat it. 

Dr Tsocanos explained that if our Genetic match up is too similar, my body may not distinguish embryos. 

In a nut shell, if this is an issue (not confirmed until blood work back) – Dr Lolatgis would transfuse Adam’s white blood cells into me, making my body react to them. To teach my body the difference and create a reaction. Then through medication – ensure my body didn’t attack embryos but rather – protect them. 

It’s all very technical and so advanced it’s almost crazy, but it works! 

We want a doctor that is going to go above and beyond to make our dream come true. I feel that in Dr Lolatgis I will reach my goal. My requests won’t be questioned but rather encouraged or at least explained if denied.

Dr Lolatgis has a waiting list, so in the interim – Dr Tsocanos is going to ask him (over dinner Tomorrow night! What a legend!) what he suggests beyond my gynaecologists recommendations… 

Within 3 weeks I will undergo Laporascopic surgery, Curette for NK Cells Biopsy, Tubes Flushed & numerous blood test done, a massive step in the right direction! 

We enquired what happens given we already have 3 embryos in storage with Melbourne IVF, Dr Tsocanos advised they can be moved to Monash IVF for use by Dr Nick Lolatgis! 👏🏼👏🏼👏🏼

So after 1 year & 1 day – we bid farewell to Melbourne IVF, we first met with Dr Hale, Nursing, Counsellors and Patient Liason Administrators on 1st March 2015. 

On March 2, 2016 we put ourselves first! We made a stand and decided to do what we feel will work best for us! 

Today will certainly be a day I never forget, this afternoon I have cried – tears of relief! Tears of excitement for our future. 

I hope that anyone currently going through IVF or considering IVF takes this on board. Do not wait! Don’t waste 12 months of your life, get a second opinion! 

We appreciate all of the love and support that we have received since deciding to share our journey. Had it not for being so open about what we are going through, we wouldn’t know what we do today. 

Love to you all 

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A step in the Right Direction

7 thoughts on “A step in the Right Direction

  1. Ahhh sorry I’m commenting again 😂😂 but this is awesome. We too have been suggested to get LIT treatment as we have a partial DQ alpha match (dr M doesn’t call it a match but it’s the only way I can put it). If you haven’t already, check out the ‘natural killer cells’ thread on Bubhub. I found out so much valuable information when it came to reproductive immunology. There are so many ladies with success stories too so if you’re ever having a low day it’s awesome to go through and see that it can work despite our brains feeling as though we won’t ever make it.

    Can’t wait to follow this journey!

    Liked by 1 person

    1. Ohh Thanks Eveclo. I have a Facebook closed group of women who have been through countless IVF cycles and are a huge wealth of knowledge when it comes to all things IVF. It was them who told me to push for NK Cells testing with my FS at Melbourne IVF and when my request was shrugged off I knew I needed to go elsewhere. Bubhub is great! And very helpful.
      I wish you all the very best on your journey and hope and pray we get our babies soon xxx

      Like

      1. Ahh isn’t the Internet amazing? I actually don’t know where I’d be without it, particularly on this crappy journey through uncertainty. I also have had so many doctors not even acknowledge the fact that I could have an immune issue, despite after our first transfer developing a crazy, all over body rash (huge immune reaction to being ‘pregnant’) it’s so obvious to me now that dr M has explained it all too.

        Eeep so excited for your next appointment now and to see what they will be testing for and can try for you! 🙂

        Liked by 1 person

  2. S says:

    If anyone can do it nick can! He’s awesome. After multiple failed attempts I went and saw nick. Diagnosed with high nk cells and wham, I’m 24 weeks pregnant!! Wish I seen him first up and saved the emotional roller coaster that is ivf. Nick is well worth the wait.

    Liked by 1 person

  3. Lauren says:

    Hey Shakiera!! I’m so happy to hear you are going with Monash IVF.. Dr lolatgis works closely with Dr Lynn Burmeister (I mentioned her to you a while back) who both have a fantastic success rate… I still check your blog every now and again eagerly waiting to hear the good news… Fingers crossed for you… You are in excellent hands xx

    Liked by 1 person

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